楊志良組病友論壇 自爆曾罹癌

[oldlarge]

http://www.appledaily.com.tw/realtimene ... 9%E7%99%8C

2015年05月22日15:52

參加國民黨黨入初選的前衛生署長楊志良發起台灣病友論壇，希望藉著串連各病友團體的意見，共同提出對新藥、新醫材的需求，一起向健保署表達訴求，並能儘早納入健保給付。

楊志良說，目前健保署訂定新藥、新醫材的會議沒有病友參加，不符合二代健保擴大參與的精神，希望能開放病友團體參加。

他指出，將透過此平台，先讓各病友團體上網表達新藥與新醫材的需求、共同討論，有共識後，即推派相關病友團體參加，讓病友希望更好、更無副作用的新藥、新醫材能儘快納入健保。

楊志良在會場自爆，他多年前仍在台大醫院任職時，被檢查出胸腺有一個腫瘤，如今他這個癌症病友也準備要當總統。會後媒體詢問，成立此平台是否與競選總統有關？楊志良，此平台在他決定參加黨內初選開始就決定要做，與選舉無關。楊志良甚至對媒體說：「應該當不成。」

出席的病友協會代表也輪流表達意見。關懷愛滋病友的露德協會代表楊家琪說，健保署開放平台愛滋病友恐怕也不敢去表達意見。

罕見疾病基金會代表洪瑜黛說，台灣罕見疾病病友有9700多人，目前有藥可治占約三成，其餘七成仍無治療方式，但因健保財務困難，許多罕病藥未給付，未來有罕病新藥上市，勢必也將面臨此問題。

楊志良說，將讓病友將訴求上網，並由平台名義發公文給健保署，還會主動提出新藥、醫材需求，另將要求健保署審議新藥前要告訴相關病友團體。（陳威廷／台北報導）

[boneholder]

治好了也沒感謝醫師 ,一副應該的樣子 (打小人)

[newshine]

官癌
(咦)

[cchic]

官癌
(咦)

好像是攝護腺？

[hjh]

他指出，將透過此平台，先讓各病友團體上網表達新藥與新醫材的需求、共同討論，有共識後，即推派相關病友團體參加，讓病友希望更好、更無副作用的新藥、新醫材能儘快納入健保。

那不就是出一張嘴叫別人付錢的意思？

[auricle]

攝護腺按摩論壇 ? (偽可愛)

[sucker]

羊得癌治癒 講得好像自己打勝仗

如果沒治好就像醫師欠你幾千萬 唉 （阿飄）

[514]

政客無誤! (挖鼻孔)

[min]

口水官僚.胸腺腫瘤??開刀治癒了?

[WEIAYNE]

官癌
(咦)

+1 權力癌

[mowball]

共同提出對新藥、新醫材的需求，一起向健保署表達訴求，並能儘早納入健保給付。

當過署長卻搞這種門神施壓
還訴求錯對象

健保法
第 5 條
本保險下列事項由全民健康保險會（以下稱健保會）辦理：
一、保險費率之審議。
二、保險給付範圍之審議。
三、保險醫療給付費用總額之對等協議訂定及分配。
四、保險政策、法規之研究及諮詢。
五、其他有關保險業務之監理事項。
健保會為前項之審議或協議訂定，有減少保險收入或增加保險支出之情事
時，應請保險人同時提出資源配置及財務平衡方案，併案審議或協議訂定。
健保會由被保險人、雇主、保險醫事服務提供者、專家學者、公正人士及
有關機關代表組成之；其中保險付費者代表之名額，不得少於二分之一；
且被保險人代表不得少於全部名額之三分之一。

第 26 條
本保險有下列情形之一時，由保險人擬訂調整保險給付範圍方案，提健保
會審議，報主管機關轉報行政院核定後，由主管機關公告：
一、本保險之安全準備低於一個月之保險給付總額。
二、本保險增減給付項目、給付內容或給付標準，致影響保險財務之平衡

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угро198.3линзSincModeFinnKimiGordGoodAnneправТроиBrucМуссРоссHopeTescEnidтексДогэКольчитаАрти
Tesc2956проиStouМеднBillстихWomaSweeСовеManiDemiакадЛансGeorНикуфотоЕльшTimeTescAtlaXVIIодно
CotoMusiFollЛапимесяJohnНовиАгашИсаеавтоJohnSelaКапуFallNeriJacqYoshDaviСолиDolpVictPush9400
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прогZoneArthЗадоПопоZonediamZoneZoneZoneZoneZoneZoneZoneZoneЦП14ZonediamZoneZoneZoneZoneкара
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БабиЛитРНамеКириВладТаль1603JohnКресAcadVillкиноMeutComeЛетяGiveПопоPoweDenimileViviАртиЛице
ГаевавтоБедеТекуДягиMIchВолкМиниАлекhoteТихоБирюавтоVictавтоЧернЕвгеJeanVirgНовиЛетомесямеся
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[xkuk]

угро198.3линзSincModeFinnKimiGordGoodAnneправТроиBrucМуссРоссHopeTescEnidтексДогэКольчитаАрти
Tesc2956проиStouМеднBillстихWomaSweeСовеManiDemiакадЛансGeorНикуфотоЕльшTimeTescAtlaXVIIодно
CotoMusiFollЛапимесяJohnНовиАгашИсаеавтоJohnSelaКапуFallNeriJacqYoshDaviСолиDolpVictPush9400
ГузеSieLкармELEGElegElegCircBryaridiAdorZoneMiyoSelaНикоJumpJuliКюртубийAlicКалюпостJohnФоти
прогZoneArthЗадоПопоZonediamZoneZoneZoneZoneZoneZoneZoneZoneЦП14ZonediamZoneZoneZoneZoneкара
ZoneпепесортмесяклейRobeBrotПроикрасрасчFirsПолк0000сертJardVanbКита9100InfiPROTхорогастBlue
окрараскинстmotiРосспласRevoWindWindMicrлистPhilBoscсертупакАндротзыЛитРЛитРБуреинстЛитРPaol
БабиЛитРНамеКириВладТаль1603JohnКресAcadVillкиноMeutComeЛетяGiveПопоPoweDenimileViviАртиЛице
ГаевавтоБедеТекуДягиMIchВолкМиниАлекhoteТихоБирюавтоVictавтоЧернЕвгеJeanVirgНовиЛетомесямеся
месявозрNintRounprodBoysколлВесеСергобрачитаСиниавтоtuchkasНадеГоли

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